Surgically shaping children : technology, ethics, and the pursuit of normality

Title
  1. Surgically shaping children : technology, ethics, and the pursuit of normality / edited by Erik Parens.
Published by
  1. Baltimore, Md. : Johns Hopkins University Press, 2006.
Supplementary content
  1. Contributor biographical information
  2. Publisher description

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Details

Additional authors
  1. Parens, Erik, 1957-
Description
  1. xxx, 274 pages : illustrations; 24 cm
Subject
  1. Children > Moral and ethical aspects
  2. Abnormalities, Human > Moral and ethical aspects
  3. Surgery, Plastic > Moral and ethical aspects
  4. Children > Decision making
  5. Decision making in children
  6. Plastic Surgery Procedures > ethics
  7. Achondroplasia > surgery
  8. Biomedical Technology > ethics
  9. Child
  10. Cleft Palate > surgery
  11. Genitalia > abnormalities
  12. Social Perception
Contents
  1. Introduction : thinking about surgically shaping children / Erik Parens -- 1. Twisted lies : my journey in an imperfect body / Sherri G. Morris -- 2. Do I make you uncomfortable? : reflections on using surgery to reduce the distress of others / Cassandra Aspinall -- 3. My shoe size stayed the same : maintaining a positive sense of identity with achondroplasia and limb-lengthening surgeries / Emily Sullivan Sanford -- 4. The seduction of the surgical fix / Lisa Abelow Hedley -- 5. Concepts of technology and their role in moral reflection / James C. Edwards -- 6. Emily's scars : surgical shaping, technoluxe, and bioethics / Arthur W. Frank -- 7. Thoughts on the desire for normality / Eva Feder Kittay -- 8. To cut or not to cut? : a surgeon's perspective on surgically shaping children / Jeffrey L. Marsh -- 9. What's special about the surgical context? / Wendy E. Mouradian -- 10. Are we helping children? : outcome assessments in craniofacial care / Wendy E. Mouradian, Todd C. Edwards, Tari D. Topolski, Nichola Rumsey and Donald L. Patrick -- 11. Who should decide and how? / Priscilla Alderson -- 12. The power of parents and the agency of children / Hilde Lindemann -- 13. "In their best interests" : parents' experience of atypical genitalia / Ellen K. Feder -- 14. Toward truly informed decisions about appearance-normalizing surgeries / Paul Steven Miller -- 15. Appearance-altering surgery, children's sense of self, and parental love / Adrienne Asch -- 16. What to expect when you have the child you weren't expecting / Alice Domurat Dreger.
Owning institution
  1. Columbia University Libraries
Bibliography (note)
  1. Includes bibliographical references and index.